My Weaknesses Will Not Define Me | Life With Chronic Illness

I wanted to share a post with you that is a little more open than previous posts. It’s taken me close to two years to write about this topic and I think it’s finally time.

As a preface to this new series, I would like to say that I am not writing these posts for pity, sympathy, or attention. Not to sound harsh or ungrateful, but I really don’t need or want it. I wanted to start this series to help people much like myself, that one day found their entire world turned upside down without any clue of what it all meant. And let’s be real, those forums and outdated databases are horrible to read through! 

What is a chronic illness? I’ll save you the time of looking it up because Google basically has a ton of definitions all saying that it is an illness or condition that is long-lasting. It can often be controlled, but cannot be cured. Chronic illnesses come in all shapes and sizes. Some are worse than others, some people are affected worse than others, but they usually all suck no matter the severity. I have an auto immune disease, which basically means my immune system attacks my healthy, good guy cells. Not cool immune system! 

You’ll notice I joke about it a lot and try to make light of the serious situations because there’s not much else to do at this point, and I definitely don’t plan on feeling sorry for myself. I know just how lucky I am and that people out there have it so much worse than I do. I admire and applaud every single person fighting any form of illness because man, it’s not easy sometimes!

I don’t define myself as someone who is chronically ill (and I don’t like/use the term “spoonie”), instead, I am just a regular person like everyone else that happens to also have a chronic illness. I’m one of those lucky people (that was sarcasm) that is undiagnosed. So basically, they still have no idea what is wrong with me. I know there are a lot of you out there just like me, and boy, it’s a lonely road to travel if you don’t have people you can talk to about it.

I’ll leave it at that for now. I’ll be sharing a condensed version of my story next week to get you up to speed, then we will start with the good stuff: tips, tricks, and more on life with chronic illness. I think this will be a fun series, and I hope it helps some of you!

I would love to meet anyone going through something similar. Introduce yourself below and feel free to share your story! If you’re like I was for a long time, and aren’t ready for the whole world to know, my inbox is always open!

If it’s not your cup of tea (or coffee), I totally get it. I’ll still have just as many regular posts on here as I always have so keep your eye out for those!

Photo by Andrea David

  • Thank you for this post! I was diagnosed with Fibromyalgia when I was 17. It’s been a long (and strange) road. I too am not a fan of the tern "spoonie." I don’t want to hide my illness, but like you said, it doesn’t define me. I look forward to most posts regarding your life and chronic illness. Thanks for being open!

    • Hi Allison! Thank you for reading and for sharing your story. It’s so nice to know that I am not the only one that doesn’t like the term. It feels so label-y and definitely not full of life, which is how we should be described! I hope you enjoy the series and remember, my inbox is always open if you need a good non-pity party vent session. πŸ˜‰

      xo, Suz

  • Posts like these will always be my cup of tea, Suz!

    Thank you for opening up here. As a fellow sufferer, I can empathise entirely with your situation. I am so very sorry you’ve still yet to be diagnosed, that’s a hard path to walk down, especially – as you said – without others for company. I was finally diagnosed in 2013, aged 27, although my journey since then hasn’t much altered. I’ve joint hypermobility syndrome, and live with constant pain that all-too-often affects my mental health (one of the reasons why I struggled so much at university – stress does not help pain, that’s for sure!). Opening up (I did so very recently in an Instagram post) is one of the ways I help myself battle it – knowing I have people behind me, fighting my corner, well…that’s a priceless kinda feeling.

    I’ll forever have your back, my friend, and I’ll always be in your corner xxx

    • Oh Tori, thank you for your continuous support and encouragement sweet friend! You are wonderful, and I thank you for always being in my corner. You know I’m your biggest fan and am always here for you for anything you need! xo

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